Well, the missing-in-action blogger is finally back at her desk. Just in time to complain about the amount of work it's taking to get Abigail ready to enter 3rd grade. I'll spend the rest of the evening filling out emergency action plans, packing medicine and making sure all "i's" are dotted and "t's" crossed. Tomorrow morning we meet with her teacher to discuss her peanut allergy. How easy it would be for us parents of allergic children if all we had to do was purchase school supplies and maybe a couple of new outfits at the start of each school year.
Speaking of meeting teachers, I'm a touch puzzled with her's. I reached out four times in 8 days using 3 different forms of communication in an effort to schedule this meeting. It wasn't until Open House last night that she acknowledged receipt of my messages and asked what time was good to meet. I'm hoping that's not an indication of things to come. She did present an excuse. She was busy unpacking and prepping the classroom.
We don't have a 504 in place for Abigail. Up until this point, her teachers and the school administration have been super easy to work with and very accommodating. Do you guys have one? We're so close to the end of the trial. Just one more school year. I don't want to permanently label Abigail if we can get through this next year without one. I've got an e-mail out to our doctor at Duke to see what they are advising their trial participants. I'm anxious to hear back and see if they think Abigail should have one even if she is considered "peanut allergy free" next summer. However, depending on the outcome of our meeting tomorrow, I might be filling out the paperwork. I'll keep you posted.
I have several tools that might be of some help in back-to-school preparation. Links to classroom letters, safe snack lists, etc., are in the right hand margin. I've used Google Docs. Let me know if you have trouble accessing them. I also have an Allergy Action Plan that I give to each teacher to hang in their classroom and a smaller version that I laminate and put in her medicine bag, backpack, etc. I haven't been able to save those and keep their format in tack so if you are interested in those documents, e-mail me, and I'll send them over.
There is still a lot to be done this evening. I've made an allergy tag for her EpiPen bag that I'd like to share. I also have a ton to catch everyone up on. It's been a very busy summer. Thanks for your patience. Thanks also for continuing to support my efforts with this blog. You guys are great!
We've been on a strict avoidance of all peanut products since my daughter was diagnosed with an allergy at 18 months. Abigail is now 9 and our family is blessed to be participating in a Clinical Trial at Duke Hospital (now UNC Hospital). Reading every label on every food item I purchase has also given me a strong sense of what it takes to eat healthy. So, here's our journey to eating healthy and becoming peanut allergy free!
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